PNES

Letter from the Director

Welcome! If you are looking to learn more about psychogenic non epileptic seizures (PNES) and about the treatment programs we offer patients, please read on.
For over ten years I have had the opportunity to work with patients who have been diagnosed with psychogenic seizures. It still astounds me that almost every time I begin to talk to a new patient I hear about a long road they had to travel to arrive at our program. This trip typically started with uncontrollable seizures and doctors who treated the condition as medically untreatable epilepsy. Eventually, a diagnosis of psychogenic non epileptic seizures was made; this was usually followed by a referral to a psychotherapist. Many times, the psychotherapist as well as many other doctors were not familiar or refused to take a patient with this condition. Disbelief and uncaring attitudes were sometimes also expressed by friends and family. Adding to the patient's difficulties, information on the condition was nearly impossible to find. Years of work with our patients have helped shape our view of psychogenic non epileptic seizures and to develop a novel and unique treatment program. Our program is based on a team approach in which our patients are followed closely from their very first neurological visit all the way through completion of treatment.
The cornerstone of the program is a therapy cycle that was specifically designed to target underlying emotional issues that often maintain and fuel psychogenic events. Patients undergo a battery of tests to determine whether they might benefit from our different treatment modalities. Patients are seen in a group and individual therapies in which they learn about the disorder and health promoting techniques. Ongoing monthly support groups are then provided for those who may need to touch base with the team after they complete the program.
Our goals are several: to diagnose accurately, provide effective treatment and support, promote future health and empowerment and, educate all who are interested in learning about psychogenic non epileptic seizures.
I invite you to visit the different sections of our site and I look forward to meeting you in person someday soon.

Lorna Myers, PhD
Director, PNES Program

Our recent publications
Psychogenic non-epileptic seizures:
A Guide
(new book)

Click here to look inside.

What do you call your non-epileptic condition?

x
Survey results

What do you call your non-epileptic condition?

These are the most recent survey results
24 votes
Psychogenic non-epileptic seizures (PNES)
88%
Non-epileptic attack disorder (NEAD)
13%
Psychogenic non epileptic events
0%