Useful Links
Resources
We have compiled a number of excellent resources for psychogenic non-epileptic seizures below including a state-by state search tab for epilepsy centers, e-books on PNES, blogs written by persons who carry a diagnosis of PNES, and educational non-epileptic seizure websites.
Other useful links about psychogenic seizures
- The website for professionals seeking education on psychogenic non-epileptic seizures
- Non Epileptic Attacks (in the United Kingdom)
- Functional and Dissociative Neurological Symptoms: a patient’s guide
- FND Hope unites people diagnosed with Functional Neurological Disorder [FND]/Conversion Disorder [CD]. It has many resources available and has satellites in the US, UK, and Australia.
- Non epileptic seizures and trauma and PTSD
- Book recommendation: Lowering the Shield: Overcoming Psychogenic non-epileptic Seizures-Kindle book edition. John Dougherty. This book is written for patients diagnosed with PNES and their loved ones.
http://www.amazon.com/Lowering-Shield-Psychogenic-Nonepileptic-ebook/dp/B00BTMB38G#_ - Book recommendation: The Color of Seizures: Living with PNES by Kate Taylor and Jeffrey Underwood. This book is written by a person living with PNES and her co-author. It discusses the realities of PNES and provides numerous reflective and artistic exercises for patients to employ in their road towards self-understanding and recovery.
http://www.amazon.com/gp/product/1515243052?ref_=sr_1_2&s=books&qid=1440247787&sr=1-2&keywords=non%20epileptic%20seizures&pldnSite=1 - Are you looking for an epileptologist (neurologist who specializes in epilepsy diagnosis and treatment) to determine whether you have epileptic seizures or psychogenic non epileptic seizures?
Find a doctor will assist you in finding an epileptologist by state or zip code:
http://www.naec-epilepsy.org/about-epilepsy-centers/find-an-epilepsy-center/ - Article on Psychogenic non epileptic seizures that discusses that psychotherapy may be the more effective mode of treatment for PNES-Dr. Curt LaFrance.
- Dr. Selim Benbadis article calling the APAs to action for the proper treatment of psychogenic seizures
- Psychogenic non-epileptic seizures: A Guide for patients and family Webinar
- Psychogenic non-epileptic seizures: A Guide -new book-webinar
- Lowering the Shield Facebook page
- Basic PNES information for patients and health professionals
Patients: This form can be shared with health professionals who are unfamiliar with PNES and to educate friends and family
Professionals: This form can be shared with newly diagnosed patients - PNES resources for patients and caregivers
This form includes print and on-line resources for patients - Dissociative seizures
- Dissociative seizures: important facts
- Treatment of Dissociative Seizures / Attacks Learning to do something about the warning symptoms
- Taking control of your seizures (the Sheffield Teaching Hospitals information packet)
- Functional Neurological Disorder Society